Quality Of Life

About Nail–patella syndrome

Nail–patella syndrome (NPS) (also known as “HOOD syndrome”) is a genetic disorder that results in small, poorly developed nails and kneecaps, but can also affect many other areas of the body, such as the elbows, chest, and hips.

Charles Snyder III – A Better Quality Of Life

Transcript: I had a grandfather that was in the Philippines during World War II. They called what he had Shell Shock. And then he died in 97 so that was even before they even came up with Post Traumatic Stress Disorder. So but I always kept that in my memory, cause he told us a lot of stories and I always felt he did the honorable thing, being drafted in. Fighting for World War II. And so when I came to this conference and it happened to happen simultaneously with the Disabled Veterans of America conference, that I immediately made a connection, because my grandfather is always on my mind because I’m Charles Snyder the III, and it was like a family tradition, so I kept it going through our son Charles the IV in honor of my grandfather.

Because to me it represents the ideal of freedom, and people that didn’t think twice, he could have ran, people ran from the draft, even in World War II. But he decided to take that path. He could have done anything he wanted to do. But when he came back, it was like OK, there is a General Motors job here waiting for me, got a house, and a family now. That’s the way his life turned out. And I feel that I’m in a position to do something about maybe something that could help now, people returning from Iraq from their tours.

When I mention that whole entire story, because that kind of stuff improves my quality of life. To know through 13 years of research, or close to it. To have the confidence, wisdom and knowledge to speak about something enough to where I can help a veteran maybe fell a better about himself, to help his family, or help himself not give up on life. Cause I wanted to give up on life a lot of times when I was in the depths of my pain, chronic pain. And then with the medications it seemed to exasperate them, even though back then it seemed like the more I got, the more it would help.

I know George McMann came to Flint in 2007, when we passed the fifth local law in Michigan. There were five of them, Detroit, Ann Arbor, Ferndale, Traverscity, and Flint was the fifth. And then once we passed Flint, were able to get the funding gathered for the statewide imitative. However, in 2007 I got George one of the four remaining investigational new drug program patient, federal marijuana program recipients, I guess. And it was a really great thing for him to come. It was in February, it was cold. I mean he came with his wife Margaret to Flint. And we did a press conference, and got to earn media it was really great. But that for me was a full circle experience, cause when I was at the height of my depression at about 24, from all this chronic pain hitting me. I opened up this email and discovered George. And then the eureka moment was for me, that well, he has Patella Syndrome, and I do, why is he getting treated that way and I’m being treated this way, in so many words.

And it still took me quite a few years before I was able to talk to George, I’d say after that, 3 or 4 years later it came to fruition. Where I was able to get a hold of George. And he was able to come to Flint and it worked out well. That was the last time I saw George, and talk to him, and now I hear that he is having health issues. I hope everything turns out well for him.

But that is an important part of Nail Patella Syndrome, and George also, if you check his website out. He says my story. That was up there, I read one of the first things, and it said my story. I read his story, it sure as heck sounded close to mine but it was his story of course. It was way worse than mine. George McManns is way worse than mine. So are a lot of my relatives. So it is difficult to sit here and complain at this point when I have discovered a medicine that works so effectively. And I feel like I have gotten my life back as a result.

To tell you everything I have benefited from, we split our own wood, grow our own food, take care of all the household chores and duties, look after a 4 year old and 7 month old, and travel all over. That seems to pretty much sum up that medical cannabis works for Nail Patella Syndrome. I can definitely speak confidently in that.

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