
Born With Nail Patella Syndrome
As a result of using cannabis therapeutically, my health has benefited immensely. Not only the opiate medications tend to keep me, during the winter months, kind of bed ridden.
Really the reasons my life has improved are multifaceted. Some of the main areas are my health and diet has increased as the result of my therapeutic use of cannabis. Because of the research associated with cannabis, and I felt the research was right or else I would not have continued in my advocacy and activism. It has proven to be more and more true as the research continues to come out like this Patients out of time Conference.
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Quality Of Life
I had a grandfather that was in the Philippines during World War II. They called what he had Shell Shock. And then he died in 97 so that was even before they even came up with Post Traumatic Stress Disorder. So but I always kept that in my memory, cause he told us a lot of stories and I always felt he did the honorable thing, being drafted in. Fighting for World War II. And so when I came to this conference and it happened to happen simultaneously with the Disabled Veterans of America conference, that I immediately made a connection, because my grandfather is always on my mind because I’m Charles Snyder the III, and it was like a family tradition, so I kept it going through our son Charles the IV in honor of my grandfather. Because to me it represents the ideal of freedom, and people that didn’t think twice, he could have ran, people ran from the draft, even in World War II. But he decided to take that path. He could have done anything he wanted to do.
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Nail Patella Syndrome
Actually, the accident occurred when I was 22, so within a year I had found a surgeon, an orthopedic surgeon that would perform the surgery. So by the time I had seen the orthopedic surgeon and he got me on medications in response to the actual injury that was received through the accident. But then like I said, it seemed to me once I got on these pharmaceutical medications it made things a heck of a lot worse. Its like yeah, there was some relief here and there, it was so short term and not very effective in the long run. It seemed to me as if, through my experiences, these doctors gave me every thing I needed and then at a certain point, they leave you kind of high and dry so to speak. And its like what are you supposed to do. I was given no proper paperwork on how to deal with any of these symptoms that go along with coming off of pain medications.
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Charles Snyder III
My name is Charles Snyder the 3rd. I have a condition called Nail Patella syndrome. As soon I was able to comprehend the fact that I had small knee caps that would dislocate when my knee bent and didnt have thumbnails, I was able to, Id say was about 4 or 5 years old when I started to really realize like if you bump you knee and dont have a kneecap there, you have a lot of long term pain.
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Charles Snyder III
Nail Patella Syndrome is manifesting in Naveya, and Charlie. Naveya had the clubfoot aspect. Charlie does not however; he just has the nail manifestation
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