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Dravet Syndrome

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Remembering The Incredible Life of Charlotte Figi
Lane Trachy 2020-04-17

Remembering The Incredible Life of Charlotte Figi

Charlotte Figi, the amazing girl who brought national attention to the issue of medical cannabis passed away on Tuesday, April 7th at the age of 13.

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NHS Approves Two Medicines Derived From Cannabis in England
Lane Trachy 2019-11-13

NHS Approves Two Medicines Derived From Cannabis in England

This week, the NHS approved two cannabis-derived medicines for the first time. It is a positive step for the future of legal cannabis in England.

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Doctors Can Now Prescribe Cannabis Drug Epidiolex in All 50 States
Lane Trachy 2018-10-31

Doctors Can Now Prescribe Cannabis Drug Epidiolex in All 50 States

The ability for doctors to prescribe Epidiolex throughout America makes it the first pharmaceutical cannabis drug, that is legal in every state.

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Months After FDA Acceptance, CBD Drug Epidiolex Gains DEA Approval
Lane Trachy 2018-09-27

Months After FDA Acceptance, CBD Drug Epidiolex Gains DEA Approval

In June of 2018, the FDA approved, for the first time, a cannabis based drug. Epidiolex, is a CBD drug used to treat Dravet Syndrome.

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Epidiolex Becomes First Cannabis Based Drug Approved By FDA
Lane Trachy 2018-06-27

Epidiolex Becomes First Cannabis Based Drug Approved By FDA

CBD-based epilepsy medication Epidiolex recently became the first cannabis based drug approved by the Food and Drug Administration.

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New Study Shows CBD Can Treat Epilepsy From Dravet Syndrome
Lane Trachy 2017-05-30

New Study Shows CBD Can Treat Epilepsy From Dravet Syndrome

A study of 120 children and teenagers shows CBD can hep treat suffers of Dravet syndrome – a form of epilepsy that causes many daily seizures.

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Patient Story - J.J. Samply
Daily Dose 2016-12-11

Patient Story - J.J. Samply

J.J. Sampley has suffered from Dravet Syndrome since he was an infant. He has experienced devastating seizure activity throughout his life. But he is finally beginning to heal thanks to medical marijuana legalization in Florida.

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Grandparents Donate 3 Million To Cannabis Research After Granddaughter Diagnosed With Dravet Syndrome
Daily Dose 2016-12-10

Grandparents Donate 3 Million To Cannabis Research After Granddaughter Diagnosed With Dravet Syndrome

Thomas Jefferson Universityā€™s Center for Medical Cannabis Education and Research is being renames to honor Australian philanthropists Barry and Joy Lambert, who donated $3 million to the facility.

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Cannabidiol Lowered Frequency, Severity Of Seizures In Trials, But Without Euphoric Effect
Daily Dose 2016-12-08

Cannabidiol Lowered Frequency, Severity Of Seizures In Trials, But Without Euphoric Effect

A purified oral marijuana compound may help treat epilepsy. Researchers found that cannabidiol (CBD) helped reduce the frequency of seizures in children and adults with Dravet syndrome and Lennox-Gastaut syndrome.

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Elizabeth Thiele sits down with Neurology Advisors to discuss cannabidiol research
Daily Dose 2016-11-27

Elizabeth Thiele sits down with Neurology Advisors to discuss cannabidiol research

Elizabeth Thiele, MD, PhDĀ sat down with several Neurology Advisors to discuss the state of cannabidiol research for the treatment of refractory epilepsies.

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Ava Barry Has An Extremely Rare Drug-Resistant Form Of Epilepsy
Daily Dose 2016-11-17

Ava Barry Has An Extremely Rare Drug-Resistant Form Of Epilepsy

Six-year-old Ava Barry suffers from daily seizures. Several pharmaceutical medications have not improved her condition and she is frequently hospitalized. But her parents believe CBD oil can help her.

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13 Year Old Medical Marijuana Advocate Dies in Family Home
bohan 2016-03-16

13 Year Old Medical Marijuana Advocate Dies in Family Home

Medical Marijuana patient dies from her epilepsy A 13 year old medical marijuana advocate…

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Update on Grace - ā€˜My daughter died waitingā€™ for medical cannabis
Chris Nazarenus 2015-11-25

Update on Grace - ā€˜My daughter died waitingā€™ for medical cannabis

It saddens our hearts to report that 20 month old from Harrisburg, Pennsylvania, Grace…

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High CBD / Low THC Cannabis Treatment For Dravet Syndrome
Daily Dose 2015-08-03

High CBD / Low THC Cannabis Treatment For Dravet Syndrome

Dravet Syndrome Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is…

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Father Gives His Sick Son Medical Marijuana Extract
Daily Dose 2015-02-06

Father Gives His Sick Son Medical Marijuana Extract

This video is from a new documentaryĀ The Culture HighĀ which looks at both sides of…

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Medical Marijuana Entrepreneur Moves to New York
Daily Dose 2015-01-31

Medical Marijuana Entrepreneur Moves to New York

Charlottes Web Developer Wants toĀ Grow In Big Apple ALBANYā€”Medical Marijuana Entrepreneur Moves to New…

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Josh Stanley | TEDxBoulder
Daily Dose 2015-01-04

Josh Stanley | TEDxBoulder

The surprising story of medical marijuana and pediatric epilepsy | Josh Stanley | TEDxBoulder…

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Expanding Production Of  Charlotte's Web Cannabis Oil
Chris Nazarenus 2014-12-05

Expanding Production Of Charlotte's Web Cannabis Oil

Ā  Stanley brothers expanding production of cannabis-based oil The five-brother operation producing a cannabis-based…

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Watch cannabis knock out this childā€™s seizure in a matter of seconds
Daily Dose 2014-10-16

Watch cannabis knock out this childā€™s seizure in a matter of seconds

Cannabis Oil Impacts Seizures 12-year-old “Cyndimae” (11-years-old at the time of this video) suffers…

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