She has forcefully and earnestly battled osteogenesis imperfecta congenital, the most severe form of the rare genetic disorder, since birth. Think brittle bone disease mixed with scoliosis and melded with multiple gastro-intestinal complications. Bend and snap.
She has never placed one foot in front of the other. Instead, she awakes every day to a body buckled, bent and bound to a wheelchair. The medicinal marijuana, outlawed in the state of Florida, crowds out most of the pain. Some still slips through.Read More